Sponsoring LGS Sri Lanka awareness programs around Sri Lanka

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World Kindness Sri Lanka & Sisters at Law are proud to sponsor the LGS Awareness campaigns around Sri Lanka with the support of LGS Foundation and the kind medical specialists in Sri Lanka.
What is LGS ?

What is Lennox-Gastaut syndrome?

  • The Lennox-Gastaut syndrome (LGS) is a type of epilepsy with multiple different types of seizures, particularly tonic (stiffening) and atonic (drop) seizures.
  • Intellectual development is usually, but not always, impaired.
  • The EEG (electroencephalogram) shows a classic pattern of background slowing and spike-wave bursts at frequencies less than 2.5 per second.
  • The cause of the disorder is unknown in 1 out of 4 children.

Tell me more

Lennox-Gastaut syndrome (LGS) accounts for only 2 to 5% of childhood epilepsies. Yet children with this type of epilepsy are well-known to both the pediatric and adult neurologist, because their seizures are hard to control and they will need life-long treatment. The intellectual and behavioral problems add to the complexity of this syndrome. There are often difficulties in managing life with LGS. This epilepsy syndrome usually persists into the adult years. Changing some in its presentation with age, it requires familiarity by all health care professionals. In the last few years, several new treatments have emerged. While none are a cure for LGS, this is good news for a group of children that historically has had few good treatment options.

How do you treat LGS?

Treatment is difficult, because the seizures often don't respond to seizure medications, also know as anti-epileptic drugs (AEDs). The intellectual changes do not respond to any currently available medicine or treatment either. Partial relief from seizures may be found with the use of medications including valproic acidlamotriginetopiramatefelbamateclonazepamrufinamideclobazam, and occasionally other medications. Rescue therapies, or treatments that can be given to help stop or shorten clusters or seizures, is an important part of seizure care for people with LGS. Stimulation of the vagus nerve in the neck, with an implanted pacemaker (VNS Therapy) sometimes improves seizures in people with LGS. Dietary therapies have also been very helpful in some people. An operation to separate the two halves of the brain, called corpus callosum surgery, may reduce seizures and injuries, but obviously is a big undertaking.

Summary

LGS continues to present great challenges to children and adults with the syndrome, their families, and their caregivers. Much more research is needed to identify better therapies of all types. New advances in seizure detection, recording, and alerting, as well as other safety and protection devices, are avenues that need further attention by families, health care providers, and researchers. These types of treatments and services can improve safety management and quality of life for people with LGS and their caregivers.